Delaney (Her Story- per her mom)
On October 9th, 2008 Delaney was diagnosed with a Diffuse Intinsic Pontine Glioma (DIPG). This is an inoperable brain stem tumor, that has a prognosis of 6-12 months (apprx) and survival of 2 years is less than 8%. She is currently in her 5th week of radiation and is about to enter MD Anderson for the second time to finish her IV chemo. We will be spending Thanksgiving in the hospital.
In May of 2008, I took her to the pediatrician because she was slurring her speech and had a droop in the right side of her face; she was also klutzier than normal. He said she had a lopsided smile, and said she needed speech therapy. In September, I took her back because her speech was incoherent and she was now having headaches and trouble swallowing. He referred me to a pediatric neurologist and ordered an MRI. We were all stunned to find the mass on the MRI.
After attempting to work as many hours as possible and still take her to her daily appointments, I was let go from my job. The help from Heroes for Children was an answered prayer.
We appreciate the work that you do.
* We are THANKFUL that we could assist Delaney’s parents at this difficult time when they are trying to provide for Delaney as best as they can. We are THANKFUL Delaney is resilient and happy through all of her treatments!*
Catherine (Her Story – per her social worker)
Catherine does not have access to a computer in her home and this will assist her with her homework and staying in touch with friends. She is homebound school. She is scheduled for more chemotherapy, then a surgical procedure to remove the cancer, and then more chemotherapy. She and her parents are thrilled for this opportunity.